“Before Self-Determination, everyone was making decisions for me. I didn’t have a say in what I wanted to do. Now I’m living the way I want to live. I get guidance, but I make my own decisions about what goes on in my life. And I’m doing good!”
– MIKE WILSON, Bishop
Kern Regional Center Self-Determination Pilot
Will YOU help make self-determination a reality for the thousands of Californians who want more control over their lives? If people are to be given the choice for self-determination, we are going to fight for it.
AB 1244, Self-Determination
AB 1244 by Assemblymember Wes Chesbro (D-North Coast) gave people hope. AB 1244 would have given each regional center client the CHOICE to keep the services they have now OR to choose Self-Determination.
Despite an outpouring of support from families and advocates, AB 1244, Self-Determination, was withdrawn from consideration on June 28.
Self-Determination would give regional center clients the freedom to create and control their own services and supports.
Under Self-Determination, people would control the regional center funding that serves them or their minor family member. They would have a life plan that they create with assistance from people they choose, not people who are assigned to them.
The life plan focuses expenditures on key life goals:
- For those living with family, supports to help the family cope with the stress of disability
- For those not living with family, a place to call home where they decide who enters and works for them
- Real community participation
- Real friendships, companionship, and relationships
- For working-age adults, earning money through regular jobs or self-employment.
Self-Determination means people could hire their own support staff or negotiate with an agency for the services that they want, instead of settling for the services that are available.
Self-Determination means people could hire who they want, supervise and dismiss them as they want, and pay them what they want above a minimum level of pay.
Direct support workers that they hire directly would be able to organize to advocate to the state to protect the program and seek better funding for better pay.
The Guiding Principles
AB 1244 is designed after the Guiding Principles, an agreement between SEIU and national leaders of the movement for self-determination for people with disabilities. The Guiding Principles supports the aspirations for freedom and dignity of people with diverse disabilities of all ages and the workers who support them.
Find out more about the Guiding Principles here.
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